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Waardenburg Syndrome – Why People are born with Sparkly eyes and Streak white hair

What is Waardenburg Syndrome?

This week I saw a viral post on social media about a boy found in a burial with sparkly blue eyes and streaks of white hair standing on his fontanel. So, I decided to make research on it to find out why he is born that way. First, I found out that it is a health condition known as Waardenburg syndrome. What is Waardenburg Syndrome?

A young boy has caused a buzz on the internet for his strange features. He was said to be found in a burial in the Eastern part of Nigeria. The original poster who shared the boy’s photo on his Facebook page said he wants the boy to be connected or linked up and used as a model or as a god in a movie role.

Sincerely speaking, he looks like an Amadioha god in a typical Nigerian Nolly wood scene. He was born with strange sparkling blue eyes and gray hair which only chose to sit at the center of his fontanel. His nose looks as if it was shaped with a carving knife.

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Here is the original post by Ifeanyi Okunnaya Ezebuiro:

Meanwhile, Ifeanyi Ezennaya Ezebiro is not the original poster. He has been accused of stealing a post without giving due credit to the original poster. From the evidence, Enyinnaya Nwosu was said to have posted this boy first after encountering him in his village during his late father’s burial.

“This is one of the guys who helped me do all the hard work during my father’s burial in the village.
He is handsome with special eyes color and white hair. He is just a special star.
He will be good as a model.
A rough diamond.
Please share and let this talent not be wasted.
Ezinma Umeh Wobia Anwuri Nzewunwa Maze Couture” – Enyinnaya Nwosu.

What is Waardenburg Syndrome?

Waardenburg Syndrome is a health condition that is responsible for people who are born with strange colored sparkling eyes and streaks of gray or white hair seated on a strange spot on the head. The change of the hair color may sometimes affect the surrounding skin and give it a white color.

Another observation about people with Waardenburg is that the colors of both eyes are sometimes not the same. The other one may be sparkling white while the other may be blue.

Ever since the photo of this strange-looking boy surfaced on the internet, many people have shown interest and out to assist him in one way or the other. Some said he will do well in acting due to his alien-like features, others too said he will excel as a model.
However, this is not why we are writing this post. I also saw a comment by people who said the boy’s features are not strange. They said there are people who look like him and even more. That is actually true. His is a medical condition and it is called Waardenburg syndrome or

According to Medilineplus;“Waardenburg syndrome is a group of genetic conditions that can cause hearing loss and changes in coloring (pigmentation) of the hair, skin, and eyes. Although most people with Waardenburg syndrome have normal hearing, moderate to profound hearing loss can occur in one or both ears. The hearing loss is present from birth (congenital). People with this condition often have very pale blue eyes or different colored eyes, such as one blue eye and one brown eye. Sometimes one eye has segments of two different colors. Distinctive hair coloring (such as a patch of white hair or hair that prematurely turns gray) is another common sign of the condition. The features of Waardenburg syndrome vary among affected individuals, even among people in the same family.

There are four recognized types of Waardenburg syndrome, which are distinguished by their physical characteristics and sometimes by their genetic cause. Types I and II have very similar features, although people with type I almost always have eyes that appear widely spaced and people with type II do not. In addition, hearing loss occurs more often in people with type II than in those with type I. Type III (sometimes called Klein-Waardenburg syndrome) includes abnormalities of the arms and hands in addition to hearing loss and changes in pigmentation. Type IV (also known as Waardenburg-Shah syndrome) has signs and symptoms of both Waardenburg syndrome and Hirschsprung disease, an intestinal disorder that causes severe constipation or blockage of the intestine.

Apart from what is written here by health experts, I have also gathered photos of people born with Waardenburg syndrome. I will also make them available on this post.

Photos of the People Born with Waardenburg

What is Waardenburg Syndrome?
Another Nigerian With Waardenburg syndrome